The Weiss-Kruszka Research Foundation is led by parents of children with Weiss-Kruska Syndrome (WKS). Our goal is to connect families, clinicians, and researchers to advance understanding of WKS.

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We strive to build awareness, promote research, and provide trusted information and community support for those affected by this rare genetic condition.

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Through collaboration and shared knowledge, we aim to:

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• Support families with resources, guidance, and connection to others with WKS.
   

• Encourage research into the causes, outcomes, and potential treatments related to ZNF462 gene changes.
   

• Raise awareness among medical professionals and the public to improve earlier recognition and care.
   

• Build a global network that links families, researchers, and clinicians working toward better understanding and improved quality of life for all individuals with Weiss-Kruszka syndrome.