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Supporting Families. Advancing Research.

Weiss-Kruszka Research Foundation connects families, clinicians, and researchers to enhance the understanding of Weiss-Kruszka Syndrome, fostering support and awareness for those affected by this rare genetic condition.

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Newly Diagnosed?

You don’t have to navigate this alone. Explore resources, connect with the community, and find support throughout your journey.

WKS Patient Registry

Every family’s experience matters. Help advance research and improve understanding of Weiss-Kruszka Syndrome through participation in our patient registry.

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​Weiss-Kruszka Research Foundation

P.O. Box 11

Cumming, IA 50061

The Weiss-Kruszka Research Foundation is recognized in the United States as a 501(c)3 nonprofit organization. Donations are tax deductible to the fullest extent of the law. Tax ID: 42-1938120​​​​

 

Disclaimer: The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. Weiss-Kruszka Research Foundation is not responsible for any errors or omissions on this website.​​

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© 2026 by Weiss-Kruszka Research Foundation

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